MassGeneral Hospital Down Syndrome Program

Check out the flyer below from the Pediatric Health Promotion Lab at the University of Pittsburgh to see if you would be a good fit for this study. Fill out the eligibility survey for more details! https://www.ctsiredcap.pitt.edu/redcap/surveys/?s=NX4LHXFD4L

Do you have an AMAZING PCP/Pediatrician that your loved one with Down syndrome sees? Would you highly recommend him or her to another person with Down syndrome? We’d love to know if so! Fill out THIS QUICK SURVEY to share this information with us.... https://docs.google.com//1FAIpQLSeYS343CAEwyX9nW/viewform

Join Dr. Stephanie Santoro for a virtual focus group to discuss the concept of health for Down syndrome. The goal is to create a validated survey that will directly assess health in individuals with Down syndrome. If you are a caregiver of an individual with Down syndrome ages 6-12, please fill out this eligibility questionnaire: https://is.gd/FocusGroupInterest For more information, please see the attached flyer. Thank you!

Do you have any health or wellness concerns about your loved one with Down syndrome? Get personalized checklists for you and for your child’s primary care physician at DSC2U (dsc2u.org), a new online clinic created by Dr. Brian Skotko and a team of experts here and at Harvard Medical School. ¿Tiene alguna preocupación de salud o bienestar sobre su ser querido con síndrome de Down? Obtenga listas personalizadas con resultados para usted y para el médico de atención primaria de su hijo en DSC2U (dsc2u.org), una nueva clínica virtual creada por Brian Skotko y un equipo de expertos aquí y en Harvard Medical School.

Don’t have a Down syndrome specialty clinic nearby? You can now get the latest health and wellness information online from Down Syndrome Clinic to You (dsc2u.org), created by Dr. Brian Skotko and a team of experts MassGeneral Hospital Down Syndrome Program and Harvard Medical School. Hear what Melissa has to say about DSC2U!

Dr. Oreskovic and our MassGeneral Hospital Down Syndrome Program researchers found that adults with Down syndrome are rarely getting sufficient exercise to stay healthy. Read the full release to learn more: https://www.massgeneral.org//mass-general-study-finds-that

Our team participated in the Massachusetts Down Syndrome Congress (MDSC) Buddy Walk this past weekend for our loved ones with Down syndrome. mdscbuddywalk.org #MDSC #MDSCcares #MDSCwalks #downsyndromeawareness

Want the most up-to-date health and wellness information for your loved one with Down syndrome? Check out Down Syndrome Clinic to You (dsc2u.org), created by Dr. Brian Skotko and a team of experts here and at Harvard Medical School. ¿Desea obtener la información de salud y bienestar más actualizada para su ser querido con síndrome de Down? Visite la página de la Clínica de Síndrome de Down para Usted (dsc2u.org), creada por Dr. Brian Skotko y un equipo de expertos de aquí y en Harvard Medical School.

Researchers at University of Delaware’s Innovation Health and Design Lab are investigating the clothing requirements of children with Down syndrome aging between birth and 14 years old. If you are a parent or caregiver of a child with Down syndrome in this age range, please consider taking this short survey by clicking this link: https://delaware.ca1.qualtrics.com//form/SV_38D3XcMRnpHoyP3

COVID-19: Safe Re-entry of People with Down Syndrome into their Communities The COVID-19 virus is not yet gone. Vaccines are not yet available, although efforts are underway, and treatment options are still being evaluated. As people with Down syndrome make plans to re-enter and re-engage in their communities, our Down Syndrome Program at Massachusetts General Hospital offers the following information and resources so that caregivers can make informed decisions that are right... for their families. Click here to read more: https://mailchi.mp//covid-19-safe-re-entry-of-people-with-

Research Volunteers Needed! Our research team is composed of enthusiastic healthcare providers committed to innovation in Down syndrome research. Our team is motivated to offer research opportunities that can help maximize the life potential for all people with Down syndrome. We are proud to currently offer families two research opportunities. If you or a loved one is over the age of 25 and has Down Syndrome please consider joining our studies. Please email [email protected] or call 952-220-7329 if you are interested in participating. https://mailchi.mp/a48493356134/kids-eat-right-8166076